It has been over a three months since I have written anything. I lost my beautiful son on March 1st. Just 32 hours after he was released from a psychiatric ward where they were suppose to help him. And exactly 365 days from the big seizure that started this psychiatric, drug induced nightmare that took his life. Psychiatrists and Bartonella Stole My Son’s Life!
Nash Threatened Suicide
My son, Nash had threatened to kill himself on February 21st. We had no other choice but to have him committed for a psychiatric hold so he didn’t hurt himself. Their solution to help him was to keep him so loaded on medication that he could not feel or function.
My 22 year old son came home happy on February 27th after a weeks stay at the hospital. He had threatened suicide because he said he couldn’t stop his brain from burning and hurting. Nash said he couldn’t live in his head anymore. He came home on eight medications.
Nash seemed somewhat settled and happy after his hospital stay, but not my son. But he hadn’t really been himself for a few years. Nash was slurring, tired and basically just loaded. He was, however, optimistic and said it just takes a while for the body to adjust to the new medications. He said to me, “I will be okay mom. I have goals to get better. The doctors said it would just take a little time.”
A little History
The week before the episode where Nash threatened to kill himself we had decided to change doctors, we even discussed going to the University of Utah neurology and were going to call the next day. My son was diagnosed with bipolar depressive disorder after a half hour discussion with a psychiatrist, but we weren’t buying it anymore.
How Our Nightmare Began
He had a massive seizure on March 2nd, 2018 which started this drug infested whirlwind that the doctors thought he needed to be on. Mental illness is what they determined to be his problem. He was delusional, he was manic, he was depressed from years of not feeling well, but I knew my son was not mentally ill.
Nash Complained About Being Sick For Four Years
For a few years my son had complained constantly about being sick, sore throats, massive headaches that burned, behavior changes, lack of motivation, sad, and irritated. For four years he had rashes and swollen glands, fatigue and exhaustion. As time went on his symptoms would worsen. Nash had his tonsils out two years ago, but it didn’t stop the sore throats. He was having bone pain and the doctors just prescribed pain medication because of a previous injury.
After the big seizure that dislocated his jaw on March 2nd we were thrust-ed into the neurological world. After testing they decided his seizures were neurological episodes or PNES psychogenic non-epileptic seizures. We then entered the Psych world where they totally screwed up my son. He just kept getting worse, the meds weren’t working and their solution was to prescribe more meds.
The seizures kept coming, the depression worsened, he was throwing up all the time, he was sicker and sicker. But no one would listen to us. The psychiatrist would say you need counseling. What he needed was a doctor that actually cared.
Not One Doctor Looked at My Son, They Only Looked at the Symptoms
Not one doctor tried to connect the dots to my beautiful sons problems. They all just prescribed shit for his symptoms but never looked at him as a whole person. The neurologists, throat and pain doctors never did a physical, they never looked at his body or asked the questions that might help connect the dots. Not one doctor questioned the stria under his arms or the rashes on his body. The psych doctors never required a full physical exam to see if there could be another reason for his depressive, delusional and erratic behavior. Not one doctor looked at my son, they only looked at individual symptoms and prescribed more medication.
The Worst Night of My Life
The fact is that after the fateful night just 32 hours and exactly 365 days from the first seizure, after leaving a psychiatric hospital, my amazingly talented beautiful boy had a seizure that he couldn’t come out of because he was so flipping doped up. My son drowned in his own vomit and there was nothing we could do.
My husband and I performed CPR while waiting for the ambulance and paramedics. We got him to throw up more but It was already to late, My wonderful, sweet loving son couldn’t be saved. Psychiatrists and Bartonella Stole My Son’s Life
Since then my life has been a fog of pain, sadness, loneliness. 18 days after he passed I received two studies one published that day. I don’t know how or why they got to me but the glaring light bulb went off and all of my son’s health’s problems were answered. Sadly, it was 18 days to late.
The Last Text I Got From My Son
The last text I got from my son just a few hours before he passed was “mom, do you really think I am mentally ill? I feel like it’s something else mom. I just can’t explain it”. My son was right, it was something else. It was a curable infection called Bartonella. The published study described exactly what my son had been going through for the last four years. No body wanted to connect the dots. I get it, Bartonella symptoms like his are very rare in Idaho, but my son had spent lots of time outside of Idaho and seen many doctors.
Stria Look Like Stretch Marks
Nash had what we thought were stretch marks appear under his arms and rashes on his body. They appeared a few years earlier about the same time his behavior started to change. We couldn’t explain the stretch marks. He was never fat, and because the marks embarrassed him he always wore a shirt, even when he swam, at the beach, everywhere he wore a shirt. The marks, we now know weren’t stretch marks but skin lesions and the rashes weren’t from his reptiles or allergies but from the Bartonella infection that was in his brain, bones and body.
I Lost My Beautiful Child
My once energetic, happy, goal driven child was gone. I lost my child because doctors never looked at his body or asked him the right questions. Because he was an adult, doctors wouldn’t talk to me about his physical or mental health. And when he allowed me into the psychiatrist appointment and I asked the question about why was he always sick and had been for a few years, she looked at me like I was stupid. She said, “have you taken him to a general practitioner? Dah, he had been to many doctors over the last four years for all sorts of symptoms all connected to Bartonella Infection.
It was at this visit we decided we needed to change doctors and psychiatrists. We even called the office the day after he was released from the hospital and told them we were changing. Sadly he passed that night and we never got to make the change. Psychiatrists and Bartonella Stole My Son’s Life
Why didn’t the neurologists ask for other testing, if the seizures are non-epileptic then what were they, he wasn’t faking them and why did they happen only in his sleep. Why was he sick all the time. The doctor really didn’t care about the other symptoms. He just assumed their was a psychological problem instead of a real neurological and/or physical problem.
Stop Treating Symptoms & Treat The Patient!
My son had every symptom of Bartonella Infection, the hot flashes, seizures, fatigue, depression, burning headaches, sore throats, loss of appetite, rage, anxiety, panic attacks, deteriorating jaw bone, memory loss, burning palms, twitching shins and legs, light sensitivity, mood swings, sharp frontal headaches, muscle weakness, itchy skin, OCD, confusion, numbness, abdominal pain, brain fog, twitches, tremors and the biggest clue was the stria marks under his arms and on his sides that NO ONE even looked at. He had them all, yet no one connected the dots. No One Wanted To. They just kept prescribing for the symptoms.
So What Does This Mean?
It means I am mad as hell at everything! I am pissed that no doctor took the time to know my son and give him an actual exam. I am pissed that for the rest of my life I have to live without my son. We will never have grandchildren he will never get to marry his fiance. I will never get to go diving with my son or fulfill all the dreams we had together. My life is forever broken and the bits and pieces of my heart will never be replaced.
What is Bartonella
So what is Bartonella. I have done a lot of research since the 18th of March when I got that first published report.
Bartonella is also known as Cat Scratch Fever, no not just a Ted Nugent song from the 70’s. It is very real. They are finding that many military people coming home and displaying PTSD symptoms or psychotic behavior have Bartonella. Once treated correctly the symptoms go away and most people live normal lives.
Contracting Bartonella was thought to be done by getting a cat scratch, thus the name Cat Scratch Fever. You can indeed get it from a cat, and as those of you that know my son, he was always rescuing animals and had many scratches. I saw one study where 40% of cats in California carry the infection. Nash spent three years in school in California. It’s also very common in North Carolina and Kentucky. Nash spent three summers in Kentucky. But, you can contract Bartonella from fleas, mosquitoes, lice, dust mites, ticks, dogs, reptiles, through sexual intercourse, saliva and birth.
I have included several links below because there are as many as 30 different strains of the bacteria if you are interested in learning more.
Bartonella Steals Your Life
I have spoken with other people that were misdiagnosed with mental illnesses that actually had Bartonella. These people felt they were crazy, sick all the time and one woman was misdiagnosed for 35 years but once treated is now living a normal life off of antidepressants and other drugs.
If one doctor had looked at my entire son as a person and not a symptom I would still have my son here today.
Additional Reports on Bartonella
Here are some interesting reports about Bartonella Infection that I recommend you read. If you have any of my son’s symptoms especially the stria marks on the trunk of your body or under your arms get tested. But be aware that Bartonella is a tricky opportunistic infection and you may test negative the first time. Bartonella also effects the heart causing endocarditis.
List of Articles About Bartonella
- This is the article published on March 18th. This article lead me on my search of all of my sons symptoms, tests etc.
https://news.ncsu.edu/2019/03/bartonella-schizophrenia/
https://www.northcarolinahealthnews.org/2013/12/05/bartonella-is-everywhere-so-why-dont-we-know-more-about-it/-
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2100128/ -
https://www.phillyvoice.com/bartonella-infection-steals-life-long-it-kills/ -
https://www.publichealthalert.org/ignore-bartonella-and-die-trivializing-bartonella-is-like-ignoring-tnt.html - https://en.wikipedia.org/wiki/Bartonella
Get Tested
Bartonella in the average person usually clears itself in two to eight weeks, in some cased it takes antibiotics. However, in some of the population that contract Bartonella it causes swelling in the brain, fatigue, illness, mental breakdowns, rage, rashes, burning headaches and a host of all sorts of symptoms and problems.
If you feel that you might have contracted Bartonella, if you have unexplained mental illnesses, stria on your body get tested right away.
I am so sorry. Such a young, handsome boy full of life, a total tragedy. I know it must have been hard to write this for you, but I know is important to create awareness not only about the illness but also about our “health” care system. I am sorry for your loss.
Thank You, he was a beautiful human being.
Thank you for sharing, my heart breaks for you!
My son is battling to get well from Lyme& co infections Bart included! Activated EBV, & just tested positive for mold toxicity! MIRS!
It’s a hell of a road, & my heart & mind hopes we can find wellness ! It’s scary !
Thank you for sharing your you & your sons story to help others!❤️
Thank you Karen, Please know I am thinking of you. It is just awful that it is so misunderstood and so many are suffering. My heart breaks for all you moms and dads out there going through this with our kids. Big hugs mama.
I’m so sorry for your loss 🙁 It is true, many practitioners do not take the time to get to know their patients, therefore they have no clue what is normal for them. If only they had truly listened….😥
Thank you.
Super tragic. I’m so sorry.
Yes it is and thank you for taking the time to read it .
You deserve to be mad as hell! So many doctors failed your son, I can hardly believe it. Well, yes I can believe it. Health care in the US is shameful!
You saved your son Zac who nearly died when doctors failed to diagnose him. You fought the doctors to save Zac and he lived but is now handicapped. You spent years trying to get the proper care for Nash and again the medical industry failed you and we lost a vibrant young man with his whole life ahead of him. As a mother my heart aches for you.
Thru your pain you are thinking of others by sharing this information that will save lives. The information needs to be read by doctors, patients and drug companies everywhere. In fact I am sending this link to a friend. Her adult daughter has been severely depressed for years and every time she goes to the doctor she comes home with another prescription to add to all the others he has her on. Nothing ever helps. I’m not sure what her other symptoms are but maybe she could be dealing with Bartonella.
I don’t mean to defend the doctors but I have noticed big changes over the years. The clinics make doctors see more patients than they can handle. My doctor is ALWAYS 30-90 minutes behind when I go for my appt. But I don’t mind, he listens to me and has helped me with so many health concerns. He is close to retirement and I am wondering how I will ever find another doctor like him. Are they out there anymore?
My GYN doctor for the first time was an hour behind when I went in for my yearly visit. I sat in that exam room for 45 minutes naked under the clinic gown. I nicely let him know I was upset when he finally came in. Why did the nurse have me strip when she knew I would be waiting so long? He apologized over and over and was not rushed. He gave me the same care as always. (Another doctor I have gone to forever) At the end he explained that they no longer allow him 30 minutes per patient. They schedule one every 15 minutes. I made sure to fill out the e-mail they sent me to let them know how my appt. went. Not that it will change anything but I let them know I was not happy.
I know these are minor things compared to what your family has endured but they are examples of how the system currently operates.
Thank you for sharing this information thru your anger ad heartache. I know nothing I can say will take away the pain, anger and heartache you are living with. You are such an amazing woman Kim. Besides being a caregiver to your son and your husband, you also find time to help so many animals. Thank you for all you do.
Thank you Cindy. I hope I help some and thank you for your kind words. I personally haven’t been to a doctor in 12 years. I just don’t trust them and for obvious good reasons. Hope you are well. Hugs.
So sorry for your loss of such a handsome son…. Both me and my kids fell ill to something…seems to give out signs of infection with odd nasty lesions….lyme people semi helping me..but no one believes my kids are ill..blown all NHS Gps out the window…waste of time….that’s all.I get…it’s all in your head….😭😭😭 what sort of organisation is the health board… Full of unprofessional irrational people….totally understand anyone wanting to side track.dangerous bunch…care for they’re wage…and not they’re patients…such a devastating story…so many living the nightmare..and now the promotion of mental health through our royal family Kate and William….it seems such a barbaric system …I fear for many folk being so misdiagnosed…the whole industry needs to be questioned…seems clean cut to me as I look after wnimals..many signal tell me they have either parasitic bacterial or fungal infection or illness depending on…but many symptoms in humans are not even considered as infection… For instance pica…in an animal it resembles parasitic but in a human …madness…??? To much being fobbed of as dementia or auto immune…I see it as an easy opion…but devastating to everyone else watch people die a slow death…perhaps out of neglected infection…
😭😭😭💓💓💓💪🙋
We really have to fight, Try other doctors in other areas. I am so sorry for your kids. It is very frustrating.
THIS IS MY SON NOW!! I’m crying uncontrollably for you right now. May you find peace somehow. Sending all the love to you and yours. This past Oct I rushed my son to the emergency room because he was suicidal. He was 15. They diagnosed bipolar. I don’t even think they met with him for half an hour. He was put on meds. Meds were changed over and over. He ended up back in the emergency room with psychosis in November. The first time he was in the emergency room the nurse noticed the marks on his back. She practically accused me of child abuse. I assumed they were stretch marks. Just this past month I learned that they are bart marks. I never believed that my son had a mental illness. It didn’t make sense. It didn’t run in the family. It just didn’t seem right along with all his physical symptoms. But the doctors in the psychiatrist wouldn’t listen to me. I got kicked out of the emergency room. The psychiatrist fired me when I wouldn’t keep upping his meds. The pediatrician no longer replies to my phone calls. I had to find this all out on the Internet by myself. We made an appointment with a Lyme specialist last week. He was given a blood test. We’ll hear back in 4 weeks. But as soon as the lyme doc saw those marks. She knew. Bartonella. We’ll be starting treatment as soon as the blood test come back. God. I hope we aren’t too late.
Oh my gosh, I so happy they found they found out for him. Losing my son has been the most horrible thing in my life and wathching and knowing how much he suffered at the hands of doctors just makes me sick. Please share and spread the word there are so many others suffering the same thing. I am so happy for your son please please keep me posted.
Also know one thing, they say they can cure it, they can’t it goes dormant and hides in the body. Stress and illness bring it back out I have a friend that has been fighting Bart for 35 years. Please keep an eye on him.
I will always keep an eye on him. I will share his story like you have so that others can be saved. I’m so angry at all the doctors that “treated” him especially the psychiatrist. I told him over and over that it didn’t make sense. He told me that I needed to keep upping my son’s meds or he would become violent. Ridiculous. At one point when I asked him to speak directly to my son and educate him on bipolar he had the nerve to tell me that he didn’t think my son cared! My son is very high functioning autistic but I guess the psychiatrist thought because he was autistic- he wasn’t able to understand his “illness”. WTH!! If anything, all the terrible meds he was on were making him dumb and numb. I want to sue so bad. Sorry for the rant. I will keep you posted.
Yep aren’t they crazy. I hate psychiatrists. It’s an opinion and they are messing with peoples lives. It’s horrible.
Yes Nash was literally a zombie, and his seizures just got worse, everything go worse until the fateful night. I am so happy your son has you
bless you both, and you can’t sue, you can’t find an attorney that will do it because the dosages are in the normal prescription and you’d have to prove they maliciously misdiagnosed him and you’d have to find doctors that would back you up and they won’t . Believe I tried.
Big hugs fighting mama Keep up the fight and keep me posted.
Maybe if someone sued. These creatures only care about money.
Wow, just wow. I would be mad too, Kim. Doctors need to pay more attention. Hugs.
Thanks Edel. Been very hard for us.
I am so sorry that this happened to you. I am sorry for your loss. I hope God comforts you and feels you with his peace.
Thank you
very moving testamony. I’m so sorry for all the pain you are going through. Thank you for ‘paying it forward.’ Interestingly enough, my grandfather wanted to go into medicine in 1917 and he knew even then that the field had no cures for anything, they only treated symptom. So he went into surgery instead. It’s really horrific that the field has not progressed in 100 years.
Problem is so many bacteria’s and viruses are out there and it is impossible to test for all of them, however, my son had very clear signs. Just heartbreaking for us. Thank you.
Hi Kim. I just wanted to say thank you for sharing your son’s story. Doctors are great, but they don’t know everything. As a mom I can’t even begin to fathom the pain you have felt, but wanted you to know that this really touched me. *hugs*
Thank you Monica.
Hugs to you and my heart is breaking for you as I write this. My son is suffering from an undiagnosed mystery disease. I’m moving mountains trying to help him. I’m so sorry you lost your beautiful boy due to misdiagnosis. If I may share my son’s story. I am looking up Bartonella right now. https://patientslounge.com/conditions/Help-Needed-To-Solve-An-Undiagnosed-Serious-Mystery-Illness
Wow I just read your article and it sounds similar to my son – Bartonella will consistently pop negative and hides in the blood vessels under the skin. I would go to a doctor that specializes in Lyme and co-infectious disease. Please do. I lost my once vibrant son and watched it happened slowly he was treated for so many things and all the time it was bartonella. I have a friend that it took her 40 years to get a diagnosis after her son was born with it.
Hi Kim…I i’m so sorry that you were failed I’m sending you love, it doesn’t get any worse than losing a child.
I find myself here in search of answers as I am battling to save my sons life thank you for taking the time to bring awareness to such an important illness in which many people are being misdiagnosed.
I believe my sons had Bartonella for eight years now and I am trying to prove this to his psychiatrist and Dr through your experience what is the best way to get a diagnosis or which testing proves most dependable please?
I am so sorry Kim. I don’t know what to say, I’m beyond words. You are amazing to share that story to help other people and their families. I’ve never heard of Bartonella and didn’t know Cat Scratch Fever was real. I will spread the word.
Thank you. I know we have helped a few already and hope to help more. Thank you for commenting.
Kim, I’m truly sorry for your loss.
I myself am also recovering from a nasty Bartonella infection. Your son’s symptoms and the trouble he went through are very similar to mine. Though I was able to find a doctor and a treatment that helped me get through, hands down, the worst time of my life.
Ironically, it wasn’t thanks to doctors that I managed to find a cure. It was thanks to people like you, who did not keep quiet about what happened to them and were able and brave enough to share their terrible experience for the benefit of others.
Thank you.
Thank you so much for replying and telling me about you. I am so sorry. Are you still having issues from Bartonella? Can I ask what symptoms you did have. I have two young adults right now that can’t get a doctor to test them and we don’t have lyme doctors here in this area. Did you also have stomach problems. Anyway thank you. I am glad you survived your ordeal and are doing better.
I’ve been taking medication for 26 months now, but the fight is not over yet. My recent bloodwork still shows a bit of Bartonella infection in me, though my current symptoms are not that severe: hot flashes, headaches, pain in the soles of my feet, tiny hemangiomas on my skin. Before the treatment began, I had all kinds of other symptoms, worst of those were anxiety attacks, depression, sudden onset of tears, mood swings, night & day sweats, feeling super-tired. Antibiotics helped me a great deal, though I also helped myself with a natural (herbal) medication as well, it also worked very nicely for me.
Stomach problems: yes. But those were in my case caused by Helicobacter Pylori & Yersinia Enterocolitica. Both of those are (thankfuly) gone and right now I’m just fighting Borrelia & Bartonella.
Sadly, most doctors won’t admit but Bartonella is a chronic condition. You may go into remission and test negative but it is still laying dormant in your body somewhere. I wish you tons of luck and stay on top of it. It can rear it’s ugly head anytime.
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Kim – this article was poated on a Bartonella FB group. I have the same struggles your son had getting a diagnosis. I have 3 boys (one is named Nash!) and 2 so far are exhibiting Bartonella symptoms and we are in the midat of a getting a treatment plan going – although it may he cost prohibitive at some point. In any case thank you for continuing to advocate for those that struggle like your son. I want you to know he and his story is still impactful. Thinking of you and your Nash!
Thank you so much, I am so sorry your boys all have it. Did you get tested. I know of two moms that passed it on to their children. Please keep me posted. Hugs from an idaho mom, tomorrow marks two years since we lost him and I am just drowning in sorrow.
Hi there,
So sorry for your loss. I too have had to fight for my son. At age 9 he was threatening to hurt himself and others. We took him to Children’s Hospital in Boston again. We had been there before. They put him in their psychiatric ward for over a month. The psychiatrist he had been seeing also diagnosed him as bipolar after an hour long appointment. All they did was drug him up. I started researching and started to learn about Lyme and Bartonella. I felt he had almost every symptom including the rash. Because he is a big kid, they just said they were stretch marks. I finally found a doctor who listened and heard me and we did get a positive diagnosis of Bartonella and other coinfections. He is being treated, but I still worry about the future. This I so much for a now 11 year old.
Thank you for sharing your story.
OMG I am so happy you got a good doctor that listened. And I am so happy for your son. Bless all of you. and thanks for fighting for him.!
Thank you, I needed to read this from a mother perspective. I am so sorry you lost your son. I am scared that I might lose mine to. Something is wrong with him we go from specialist to specialist no answers, they treat you like tour stupid and wasting their time. I have suspected Bartonella for years. They teated him and it cane back negative so they wont test agin or treat. Your sons story has given me the push to keep going and demanding more for my son. Thank you, and bless you.
Bartonella is notorious for false negatives. Go to a lyme specialist or an infectious disease specialist. I have spoken with people that tested negative two or three times. Are there any rashes? Don’t quit. Please don’t quit. Bart is a bad boy and relentless on the brain and body. See someone else. Did they test by blood test? cause they almost always show negative. I am so sorry.
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I am so sorry for you pain, can’t imagine your hurt though we got very close to the same. In our daughters it appears Bartonella controls their medical decisions, seriously. They both have the Bart marks, the rage and other Psych symptoms. They refuse any kind of help believing there is nothing wrong. They went from being incredible, normal children to an encounter with a stray cat including scratches and in short order we no longer knew our girls. It took us a few years to start looking at Bartonella.
They are in their late teens now and impossible to deal with. One recently had to have a blood draw and the Nurse Practitioner was willing to add Bart H and Bart Q. It’s Labcorp so we have been told the odds of a positive are slim to none. A positive will only confirm what we already know but may not help in getting treatment.
I have to imagine that lots of parents feels like we do – it’s like they have been taken from us by the Borg on Star Trek. We have no intention of quieting – giving up on our girls is not an option.
Thank you for being a very needed voice. It may not help with your pain but it may prevent someone else’s.
I am so so so sorry, Bart is an absolutely horrible thing and I wish more doctors were educated about it. Many lives could be saved. Please keep me posted. Again, my heartfelt sympathy for you and your family, It is so difficult.
I am so sorry. I know it’s so hard/
Dear Kim,
The same thing happened to my son who committed suicide at 20 this year. He had an underlying autoimmune disorder called PANDAS or PANS, but unknown was the Bartonella infection that he had had for at least 4yrs. We didn’t realize that the antibiotics for the PANDAS was helping to temper the effects of the Bartonella, so we thought we were helping his gut flora when he was able to be off antibiotics without tics and other OCD like symptoms.
He seemed to having growing depression over the next year or so and no medications or inpatient and outpatient behavioral programs helped. His immunologist diagnosed it as Bartonella in February 2020, but the doctor gave him the traditional treatment protocol (antibiotic and antimalaria drugs) that wasn’t working. Those suffering need the aggressive protocol that the NC State research doctors gave that middle school aged boy from Missouri and cured him.
The leap from zoological pathogens to humans is increasing and global warming is making pathogens more virulent.
I feel your pain and I’m afraid there are many others needlessly suffering due to misdiagnosis.
Oh Kathleen I am so so sorry. Isn’t just horrible how misunderstood it is. My heart just aches for you.. Thank you for responding – please just don’t understand how hard this is and how debilitating the damn bartonella bacteria is. Hugs from this Idaho Mom. tomorrow marks two years for me and I am just struggling. I miss him so much.
I have been in the same place as your son, I am so sorry about your losing your son. I had lyme and bartonella, it was
known by my doctors, they could never diagnose me with lyme even though I told them I had it already. they put me
in the psych ward for the delusional thought that I felt I was sick with lyme. they would only release me if I promised
that I would forget that I thought I had lyme and that I was not sick. so I got out and I ignored it, then the seizures
started, my eye dilated, could not sit down and jerking if I tried to sleep, so I went by myself to another hospital and
had a Spect scan done and the results upset me greatly, lyme in the brain and all the coinfections..then I was able
to get treated. this is all pure ignorance. psychiatrist, neurologist that study the brain never thought about an
infectious cause..my heart goes out to you, I feel your pain, I stay away from doctors too as I dont trust them. I
wanted to post this so you know others have been thru it too and its real.
Eric thank you so much, I am so grateful that you survived it and are hopefully helping others. We just helped another young man get diagnosed. Doctors are terrible. I really appreciate the post. I hope you are doing better and having a productive happy life.
Dear Kim,
I am very sorry what happened to your son. I really don´t understand why the doctors don´t pay more attention. I was diagnosted for bartonella as well. I got it from my new boyfriend and I am affraid my children have it also. I take antibiotics for one year but still it is not ok. I have also lyme. I think it is very difficult to cure these infections. Not one antibiotics is ok, it needs combination of antibiotics for long time.
It is so sad. Hugs.
I do not believe there is a cure. I believe it hides in your body forever and stress and other things bring it out. I am so sorry I wish you all well and would love to hear from you about how things are going.
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